I learned that not knowing things is a scary but often a more truthful place. It requires lots of practice to stay there. Not knowing the future, not knowing what caused the disease, not even having a diagnosis can drive a caregiver insane. Just staying with the unknown is sometimes the way to handle the mysteries that are unfolding.
A reminder to the friends of caregivers........assuming that we know more than we actually ever can may end up being hurtful to others. Curiosity and humility are great qualities to tap into when approaching caregivers and their loved ones.
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